'TO ALL RSDS/CRPS PERSONS'

I penned sometime ago that I spoke at a symposium in South Bend, Indiana in the late 90's.

The committee's president of this particular symposium had asked me to speak from my view of living with this disease, RSDS/CRPS. 

First, I do not consider it a disease.  It is a 'dis-ease' and an' inconvenience' in my life.  It comes and goes and when it is in my life in a more vibrant way; I HURT, MY LEGS BURN AND THEY BECOME WEAK.  I become frustrated and it prevents me from doing most anything that I want to do during those times. 
However, I have learned to redirect my thinking and acceptance toward 'this too shall pass'.  Sounds easy but everything that I have learned during those times, my thoughts just automatically kick into gear, so to speak.  Just as if an EMT person comes upon a person that needs his/her help.  They do not dwell upon their skills all day but when the need arises, it just automatically kicks in to what they need to do. 

Now, I can just imagine anybody that is reading this that are hurting and frustrated at this time, might be thinking something along the lines of: 'SURE, THAT IS EASY FOR YOU TO SAY', 'WELL, YOU DON'T HURT LIKE I DO', 'YOU PROBABLY DON'T REALLY HAVE RSDS/CRPS'.  And, if there is anybody thinking along these lines, THAT IS OK!!!  ........ As long as you don't 'chalk up' what I am sharing to, "forget it, nobody and nothing can help ME!"  I will now share more of my story.  Please stay with me.

As I shared with many people there at the Symposium, I took my monkey puppet, George, with me.  You see, in my research on RSDS/CRPS and searching within myself with much prayer, hope and perseverance; I have found ways to learn, cope and, hopefully, help others in their coping.  I found these techniques brought 'purpose and meaning' into perceptive. My puppet, George helped me clarify as to how anybody can easily get RSDS/CRPS with a slight injury.  In this case, George came to the Symposium with an ace bandage on his elbow with RSDS/CRPS from running to third base in a baseball game and hit his elbow.   Plus, George has given many people some laughter.  Laughter is healing and releases endorphins.   

In my next post, I will pen a poem that I wrote for all persons that attended the Symposium.
The poem is titled: 'TO MY FRIENDS IN THIS PLACE' 'RSDS/CRPS SYMPOSIUM'

Please remember as we walk this journey with whatever has become our dis-ease and/or inconveniences, there is purpose and meaning in it.  I have found for me, seeking something bigger than myself in helping others has been a vital key in living life on purpose.  First, and foremost, remember, in the beginning of being diagnosed with RSDS, I could not make it on my own and I had to reach out to others.  Now, I can reach out to others to help them and 'in turn' it helps me.  WE NEED ONE ANOTHER.  RSDS/CRPS has become a part of our lives but IT DOESN'T HAVE TO CONSUME US. 

Acceptance says: True, this is my situation at the moment.  I'll look unblinkingly at the reality of it.  But, I'll also open my hands to accept willingly whatever a loving Father sends me.
Catherine Marshall

As we encounter situations that we cannot change, we must learn the wisdom of acceptance .....and we must learn to trust God and/or in a higher being. 


Until next time,
God Bless
Doris