'RSDS/CRPS'
Do I have your attention already? Yes, the title that I have chosen for this post is:
'HOW LONG DOES ONE SHARE?' .... 'WHAT IF'?
This title could meet anybody reading this in totally different areas and avenues in their thinking. Would you not agree? As you continue to read my post, you might want to picture yourself in your particular situation with this statement/title and entertain it as to how you are going to handle it. It could make a huge difference in your life and in the lives of others.
And, continue to read and consider my point of view in behalf of RSDS/CRPS persons, as well.
Have you ever felt 'what's the use'? Have you ever heard rumors and/or gossip? I feel they might have a different twist at times. And, if we do feel/hear these emotions and statements, how do we handle them?
I feel this happens from time to time. There are a number of things that affect those thoughts and feelings. When do we really know how/what we do might effect another in a life changing way or even a small portion of their day. I have/had many of those thoughts on my journey.
As I pen this post and discern the importance of continuing on with my blog, I long to hear from others that have a word or two to share, offer, entertain, comment .... something/anything to help RSDS/CRPS persons a better way to be treated and supported.
I know from experience that it is a continual condition. No, it is not in one's head. It does exist and there isn't enough being done about it in our local area. I am hearing and reading that there are support groups and there is a movement in others states but not here locally, that I have heard or can find. Most medical facilities that I have been a part of say that they have heard of it and they had to study a bit about it in their college courses in their Physical Therapist requirements but that wasn't very much. But, yeah, (YES YEAH), (I am quoting them) they know a little about it. THAT ISN'T ENOUGH, in my humble opinion. They just dismiss it as if it isn't really anything to be concerned about. Well, I am here to share with you: IT IS SOMETHING TO BE CONCERNED ABOUT. It is so important to have support and the tools to help oneself and than others early in the stages of RSDS/CRPS.
I remember years ago when I was asked to appear on a TV segment regarding RSDS/CRPS. After the segment, there were several that contacted the panel for help. These were persons with RSDS/CRPS. And, this one person said that she didn't want to get 'too well' because she would lose her Social Security Disability. Can you even imagine!
Therefore, once again, I feel there is a huge concern regarding both sides of RSDS/CRPS. If a person with RSDS lives in fear of becoming 'too well' that they can't/won't even help themselves, this is truly sad. Again, a lack of support, training and professional help.
I can continue to share about my experiences everyday but until another join this endeavor, I wonder about: 'HOW LONG DO I SHARE?'.... and than, I hear this voice within me. 'WHAT IF?'.... and than there is complete SILENCE.
I will just leave my thoughts there in closing this post.
God Bless
Doris
